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Neck pain and hypermobility

Posted: December 22nd, 2020, 2:45 pm
by MiddleAgeCRISIS
I have had a long term issue of hyper mobility in my neck from my CT joint up to my atlas joint.

My neck clunks and snicks and i have periods of significant pain , headaches , poor sleep, facial disturbances , my left lat is currently spasming. I see stars occasionally when it cracks.

So i use a lacrosse ball, a foam roller, a medicine ball, a back stretcher to mobilise and realign stuff.

Suggestions for stretches would be gratefully received but also how can i stabilise the joints long term. I've had physios suggest sugar water injections but i dont fancy that.

Regards

Rob

Re: Neck pain and hypermobility

Posted: February 11th, 2021, 4:49 pm
by MiddleAgeCRISIS
The last exercise is a game changer for me

https://youtu.be/GlU_o5zWd8Q

Re: Neck pain and hypermobility

Posted: February 11th, 2021, 8:14 pm
by ampire
Honestly you should talk to a physician and have an MRI of your cervical spine or better yet entire spine, things you may want to have ruled out would be slipped/herniated disks, Ehlers-Danlos, Chiari, Spinal Cord Tumor, Thoracic Outlet, Syringomyelia, Syringobulbia, etc. PT/Physio isn't going to be adequate to provide diagnosis, you should see an MD. If the MD doesn't take you seriously, see another one for a second or even third opinion. Don't make the mistake of delaying seeing a physician for diagnosis. If you are seeing stars when your neck cracks, you could be at risk for things such as stroke, paralysis, etc.

If you have a physician's approval to exercise, as in you do not have any pathologies visible on a complete MRI with contrast of brain, cervical spine, thoracic spine, lumbar spine, then light dumbbell shrugs might help, just to increase your muscle mass to stabilize the cervical spine. Stretching your muscles is going to just make things more mobile.

I went down this road, can take it to DMs if you want more info.

Re: Neck pain and hypermobility

Posted: February 13th, 2021, 3:50 pm
by MiddleAgeCRISIS
ampire wrote:
February 11th, 2021, 8:14 pm
Honestly you should talk to a physician and have an MRI of your cervical spine or better yet entire spine, things you may want to have ruled out would be slipped/herniated disks, Ehlers-Danlos, Chiari, Spinal Cord Tumor, Thoracic Outlet, Syringomyelia, Syringobulbia, etc. PT/Physio isn't going to be adequate to provide diagnosis, you should see an MD. If the MD doesn't take you seriously, see another one for a second or even third opinion. Don't make the mistake of delaying seeing a physician for diagnosis. If you are seeing stars when your neck cracks, you could be at risk for things such as stroke, paralysis, etc.

If you have a physician's approval to exercise, as in you do not have any pathologies visible on a complete MRI with contrast of brain, cervical spine, thoracic spine, lumbar spine, then light dumbbell shrugs might help, just to increase your muscle mass to stabilize the cervical spine. Stretching your muscles is going to just make things more mobile.

I went down this road, can take it to DMs if you want more info.
Thank you for your message which i respect. I have had MRIs , CT scans and x rays across the past 20 years.

Once we exit covid I will revisit medically and take on board your feedback. My wife has had three of those conditions and had surgery and you are absolutely right to flag as a concern.

I have hyper mobile vertebrae and hypo mobile vertebrae. I tend to get pain when my vertebrae are locked.

I think my CT joint has got out of line and been antagonised by my rowing schedule.

In terms of muscle strength, i do have a massive back and extremely tight pecs so i find it hard to roll my shoulders back. The last exercise has helped me massively.

The trigger for my pain is either sitting at a desk or driving a car but if i stay on my feet and walk around i am fine.

Appreciate the heads up on seeing stars.

Re: Neck pain and hypermobility

Posted: February 14th, 2021, 3:35 pm
by ampire
MiddleAgeCRISIS wrote:
February 13th, 2021, 3:50 pm
Thank you for your message which i respect. I have had MRIs , CT scans and x rays across the past 20 years.

Once we exit covid I will revisit medically and take on board your feedback. My wife has had three of those conditions and had surgery and you are absolutely right to flag as a concern.

I have hyper mobile vertebrae and hypo mobile vertebrae. I tend to get pain when my vertebrae are locked.

I think my CT joint has got out of line and been antagonised by my rowing schedule.

In terms of muscle strength, i do have a massive back and extremely tight pecs so i find it hard to roll my shoulders back. The last exercise has helped me massively.

The trigger for my pain is either sitting at a desk or driving a car but if i stay on my feet and walk around i am fine.

Appreciate the heads up on seeing stars.
I've heard a number of similar Dx applied to myself by unqualified practictioners. With the exception of "seeing stars", I have had very similar symptoms. I couldn't get imaging done for the first several years of my illness because doctors were lazy, they were always "trying to save me money" by referring me to PT or pain management rather than ordering imaging studies. I had good insurance, so the reason was a joke. The end destination always had no financial self interest in having me achieve a proper diagnosis. So when I see this type of stuff, I am never sure if I should weigh in. My sympathies to your wife, I can guess which three as they are inter-related.

For me it was a spinal cord cav mal and syringoyelia. I've had two surgeries. Rehabilitation is the primary reason I row, it definitely impacts my training and my potential. I presently appear able bodied but I find it takes a lot of gym fitness just to get through activities of daily living that most couch potatos are capable of doing with ease.

If you aren't already using slides, you should get a set. They make rowing much easier on my spine.

Re: Neck pain and hypermobility

Posted: February 14th, 2021, 6:49 pm
by MiddleAgeCRISIS
ampire wrote:
February 14th, 2021, 3:35 pm
MiddleAgeCRISIS wrote:
February 13th, 2021, 3:50 pm
Thank you for your message which i respect. I have had MRIs , CT scans and x rays across the past 20 years.

Once we exit covid I will revisit medically and take on board your feedback. My wife has had three of those conditions and had surgery and you are absolutely right to flag as a concern.

I have hyper mobile vertebrae and hypo mobile vertebrae. I tend to get pain when my vertebrae are locked.

I think my CT joint has got out of line and been antagonised by my rowing schedule.

In terms of muscle strength, i do have a massive back and extremely tight pecs so i find it hard to roll my shoulders back. The last exercise has helped me massively.

The trigger for my pain is either sitting at a desk or driving a car but if i stay on my feet and walk around i am fine.

Appreciate the heads up on seeing stars.
I've heard a number of similar Dx applied to myself by unqualified practictioners. With the exception of "seeing stars", I have had very similar symptoms. I couldn't get imaging done for the first several years of my illness because doctors were lazy, they were always "trying to save me money" by referring me to PT or pain management rather than ordering imaging studies. I had good insurance, so the reason was a joke. The end destination always had no financial self interest in having me achieve a proper diagnosis. So when I see this type of stuff, I am never sure if I should weigh in. My sympathies to your wife, I can guess which three as they are inter-related.

For me it was a spinal cord cav mal and syringoyelia. I've had two surgeries. Rehabilitation is the primary reason I row, it definitely impacts my training and my potential. I presently appear able bodied but I find it takes a lot of gym fitness just to get through activities of daily living that most couch potatos are capable of doing with ease.

If you aren't already using slides, you should get a set. They make rowing much easier on my spine.

Apologies not sure what Dx stands for.

No I absolutely respect your feedback which is from a very informed position and with regard to my wife - 16 years of headaches were ignored until my GE medical insurance got her a scan after I kicked off with her Doctor.

Chiari 1 malformation, syringomelia and an acoustic neuroma were spotted so 2 surgeries , one for the tumour / one for cranial reconstruction. Chiari 1 was associated with scoliosis.

Your perspective is a really valuable one and post covid , I will go through a medical process to double check. I think its a salutary lesson to not diagnose yourself without proper medical approval.

I was thinking of trying a SKIERG to see if that helps.

Cheers

Re: Neck pain and hypermobility

Posted: February 14th, 2021, 9:34 pm
by ampire
MiddleAgeCRISIS wrote:
February 14th, 2021, 6:49 pm
ampire wrote:
February 14th, 2021, 3:35 pm
MiddleAgeCRISIS wrote:
February 13th, 2021, 3:50 pm
Thank you for your message which i respect. I have had MRIs , CT scans and x rays across the past 20 years.

Once we exit covid I will revisit medically and take on board your feedback. My wife has had three of those conditions and had surgery and you are absolutely right to flag as a concern.

I have hyper mobile vertebrae and hypo mobile vertebrae. I tend to get pain when my vertebrae are locked.

I think my CT joint has got out of line and been antagonised by my rowing schedule.

In terms of muscle strength, i do have a massive back and extremely tight pecs so i find it hard to roll my shoulders back. The last exercise has helped me massively.

The trigger for my pain is either sitting at a desk or driving a car but if i stay on my feet and walk around i am fine.

Appreciate the heads up on seeing stars.
I've heard a number of similar Dx applied to myself by unqualified practictioners. With the exception of "seeing stars", I have had very similar symptoms. I couldn't get imaging done for the first several years of my illness because doctors were lazy, they were always "trying to save me money" by referring me to PT or pain management rather than ordering imaging studies. I had good insurance, so the reason was a joke. The end destination always had no financial self interest in having me achieve a proper diagnosis. So when I see this type of stuff, I am never sure if I should weigh in. My sympathies to your wife, I can guess which three as they are inter-related.

For me it was a spinal cord cav mal and syringoyelia. I've had two surgeries. Rehabilitation is the primary reason I row, it definitely impacts my training and my potential. I presently appear able bodied but I find it takes a lot of gym fitness just to get through activities of daily living that most couch potatos are capable of doing with ease.

If you aren't already using slides, you should get a set. They make rowing much easier on my spine.

Apologies not sure what Dx stands for.

No I absolutely respect your feedback which is from a very informed position and with regard to my wife - 16 years of headaches were ignored until my GE medical insurance got her a scan after I kicked off with her Doctor.

Chiari 1 malformation, syringomelia and an acoustic neuroma were spotted so 2 surgeries , one for the tumour / one for cranial reconstruction. Chiari 1 was associated with scoliosis.

Your perspective is a really valuable one and post covid , I will go through a medical process to double check. I think its a salutary lesson to not diagnose yourself without proper medical approval.

I was thinking of trying a SKIERG to see if that helps.

Cheers
Sorry about all that, that's a rough combination.

Dx = diagnosis, I had all kinds of pain doctors, pts, chiros, etc improperly diagnose me with all kinds of nonsense, fascia, trigger points, hypermobile this and that etc, anything but refer me to someone that was willing to order imaging.